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Research and Rare Conditions Conference

Date: 09/03/2020 to 09/03/2020 Venue: Royal College of Physicians, Edinburgh

Genetic Alliance UK, with the support of NRS Genetics, are delighted to announce that registration for the Research and Rare Conditions Conference is now open.

The conference, to be held at the Royal College of Physicians in Edinburgh on Monday 9 March 2020, will be an opportunity for those interested in research and rare conditions to hear from a range of expert speakers and participate in facilitated discussions to inform the future of rare disease research policy.

We are delighted that Professor David Crossman, Chief Scientist for Health in Scotland, will attend to provide the keynote address.

There will four themed sessions on the following topics:

  • registries and the value of data collection
  • reducing the diagnostic odyssey
  • involving patients in clinical research
  • innovation and treatment

This event is for those involved in research, NHS Scotland staff, medical students, patient organisations and representatives from industry. Refreshments and lunch will be provided.

For further information, please contact

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