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Help shape research

Involving the public in the research process (Patient and Public involvement) rather than just as a participant in a study aims to improve the quality and relevance of studies by ensuring the public perspective is incorporated. Many research funders now expect applicants to demonstrate how they have involved members of the public in the design and conduct of their research.

Members of the public involved in research would typically:

  • Help identify topics for research and ensure topics are relevant to patients, carers and members of the public
  • Ensure researchers ask the right questions and in a way that the public understand
  • Ensure people being researched are approached in the right way
  • Improve the quality of research by adding another point of view to the way research is undertaken

Patient and Public Involvement groups are run by individual networks covering a range of disease areas.