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Get Involved

As a member of the public, the NRS Primary Care Network has a number of different ways to get involved:

  • We have a number of actively recruiting studies which you may find of interest

  • We have a Patient and Public Involvement (PPI) Group based in Glasgow.

This group meets to advise health researchers and the NRS Primary Care Network on all aspects of the research process, including the materials used during research studies.

Through Patient and Public Involvement (PPI), we can help keep health research activity focused on what will really benefit patients, carers and the public using frontline services. PPI for primary care research can be difficult because most charities and advocacy organisations are organised around specific conditions. The NRS Primary Care Network has the potential to play a key link role between researchers and interested patients and members of the public.  

The NRS Primary Care Network PPI Group was established in January 2016. The group was set up to listen to patient voices in general practice research in the Glasgow area. During the course of the first year our PPI members have played an active and enthusiastic role in the development of the group: planning and participating in seminars with researchers and patients; collaborating with university colleagues in presenting a workshop for stakeholders and conducting four SPCRN PPI group meetings over the course of the year.

In 2017 the remaining Glasgow Group meetings will be held at the Mitchell Library on the following dates:

Wed 6 Dec 2017 17.30 – 19.45

If you are a member of the public and want to find out more about becoming involved or attending our next meeting, please email Tracy.ibbotson@glasgow.ac.uk or telephone 0141 330 8309.  There are different ways to get involved in the PPI group. We try to organise face-to-face meetings about four times a year but you can choose to attend as many (or as few!) as you like. 

If you are a researcher wishing to get advice or feedback regarding any aspect of your research proposal or project, please do get in touch with Tracy. PPI input is now a requirement for most funders and accessing this group is an opportunity to meet with patient representatives to obtain a valuable perspective about your project; prior to submitting your proposal.

 

  • There are several research registers which you may wish to join.

 

 

Join Dementia Research is currently focusing on new interventions for people in the early stages of dementia. People who get involved will contribute to improving our understanding of dementia, as well as shape services and treatments available to patients.

http://nhs.joindementiaresearch.nihr.ac.uk/

 

My Diabetes My Way is an interactive website to help patients manage their diabetes. The ‘My Diabetes My Way’ team are keen to increase the profile and usage of this interactive website that can be used to manage diabetes online.

It is a way of accessing personal records, allows people to add test results taken at home and gives lots of general information to improve the management of their condition and minimise the risk of complications in the long term.

http://www.mydiabetesmyway.scot.nhs.uk/diabetes/default.asp

 

Finally, members of the public, with and without a health condition, may be interested in signing up to the Scottish Health Research (SHARE) register. 

SHARE is an initiative created to establish a register of people interested in participating in health research and who agree to allow SHARE to use the coded data in their various NHS computer records to check whether they might be suitable for health research studies. This access can be incredibly useful when it comes to developing new treatments and cures for a wide variety of health conditions.

If you are interested in letting your patients know about SHARE or to request a leaflet supply, you can get in touch via the following ways:

Email SHARE at: enquiries@registerforshare.org Telephone SHARE on: 44 (0) 1382 383471 / 383230

http://www.registerforshare.org/