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Survey is crucial first step in addressing ‘unique ethical challenges facing Scotland’s social care research’
Organisations involved in ethical review of adult social care research across Scotland are being urged to take part in a key survey aimed at better understanding and improving processes
The survey — issued on behalf of the Social Care Research Ethics Working Group and Scottish Government — will gather information in order to map current ethical governance practices, identify areas for improvement, and develop guidance to help inform ambitions for change.
Coordinators aim to “identify best practices, gaps, and opportunities for collaboration to ensure that ethical governance keeps pace with the unique challenges of social care research”.
They believe the survey represents “a crucial first step in addressing the unique ethical challenges facing social care research in Scotland”.
Irina McLean, Health & Social Care Coordinator within NHS Research Scotland’s Central Management Team (NRS-CMT) said: “We are keen to gather the views, experiences, and current practices of researchers, reviewers, and stakeholders involved in ethical review of adult social care research across Scotland.
“We consider this to be a vital initiative with ethical considerations being particularly crucial when conducting research with vulnerable or marginalised populations.
“But we need as wide a range of survey participants as possible in order to develop a truly comprehensive national picture and ultimately effect the kind of well-informed improvement that we hope to see.
“It takes just over 10 minutes to complete so please do get involved.”
The Care Home Data Review — a collaboration between Scottish Government, Public Health Scotland and Care Inspectorate — highlighted the importance of understanding, developing, and embedding ethical considerations in social care research.
In line with that review, it is now hoped the new survey will provide a foundation for the development of the second phase of the project, which includes developing targeted actions.
Survey topics include ethical review processes, preparedness and expertise, and collaboration and challenges.
The team are encouraging insights from organisations including:
- Local Authorities (Health and Social Care Partnerships)
- University Research Ethics Committees (RECs)
- NHS RECs
- Research-active third sector organisations
Chair of the Social Care Research Ethics Working Group, Professor Susan Shenkin — who is also Co-Chair of ENRICH Scotland — said: “Research in social care often intersects with complex ethical issues such as privacy, consent, and the inclusion of individuals who may be frail, isolated, or living with incapacity.
“In Scotland, existing frameworks such as NHS RECs focus on healthcare research and aren’t designed to address the nuanced and sensitive demands of social care research.
“Current NHS REC structures do not necessarily have social care expertise which can leave gaps in oversight and create barriers to innovation.
“The Care Home Data Review has highlighted the critical need for embedding ethical considerations throughout research involving sensitive data, and it made important recommendations specific to social care.
“We therefore need to gather broad insights into the current processes, practices, and challenges for those who have experience of social care research, either as a researcher or a research participant.”
She added: “If you or your colleagues would be interested in contributing to a wider discussion or sharing your experiences, please provide your contact details.”
Please note that responses should be submitted by Friday 13 June. All will be kept confidential and anonymised.
For any queries, please contact SWStat@gov.scot.
Publication date: 5th June 2025
