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NRS Diabetes Register: Privacy Information and How to Join

Privacy Information Notice: downloadable PDF

What is the Diabetes Register?

New medical treatments and therapies are being developed through research all the time, bringing hope to people living with diabetes. But the researchers making these breakthroughs need your help.

The NHS Research Scotland (NRS) Diabetes Register gives all patients with diabetes, living in Scotland, an opportunity to be contacted about taking part in diabetes-related research projects.

By joining the Diabetes Register, you allow the NRS Diabetes Network to securely access your NHS diabetes computer records. Your NHS diabetes computer record consists of information held in SCI-Diabetes. SCI-Diabetes provides an electronic patient record to support treatment of NHS Scotland patients with diabetes.

If a research project would benefit from someone with your health record taking part, a member of the NRS Diabetes research team will contact you to provide more information and ask if you would be interested (your name, preferred method of contact and Community Health Index (CHI) number are provided to NRS Diabetes research team members). 

Whether to take part in a research project is your decision to make.

How do I join the Diabetes Register?

It only takes a minute to join the Diabetes Register.

To join by email:

To join by post:

  • Contact NRS Diabetes on 01382 383 595 or administrator-sdrn@dundee.ac.uk and ask for a registration form to be sent to you. It's free to post back. 

Please read the Privacy Information Notice or, to receive a copy, please contact NRS Diabetes.

How do I withdraw from the Diabetes Register?

Withdrawing from the Diabetes Register is simple.

If you decide you want to withdraw please call 01382 383 595 or email your full name, postcode, date of birth to TAY.diabetesresearchregister@nhs.scot

Questions?

If you have any questions or want to find out more please contact NRS Diabetes at:

  • Email: administrator-sdrn@dundee.ac.uk 
  • Telephone: 01382 383 595
  • Address: NRS Diabetes, Diabetes Support Unit, Level 8, Ninewells Hospital, Dundee DD1 9SY

NRS Diabetes Register Privacy Information Notice

Your personal information is in safe hands:
  • We do: respect your privacy
  • We do: keep your personal information secure
  • We don’t: sell your personal information.

Your privacy is very important to us. NRS Diabetes is committed to providing people with the information they need to understand how their personal information is used. This privacy notice is provided by the NRS Diabetes staff.

NRS Diabetes: Privacy Information Notice for letters sent to people with diabetes with an opportunity to join the NRS Diabetes Research Register

Privacy Information Notice

Sending letters to patients with an opportunity to join the NRS Diabetes Research Register

If you have received a letter and NRS Diabetes Research Register registration leaflet in the post this Privacy Notice explains how we have used your information in order to facilitate the lettering process. If you are unsure about any aspect of this process or you have any other questions please contact us on 01382 383 595 or administrator-sdrn@dundee.ac.uk. Alternatively, please write to us using our address on the front of this document.