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NRS Diabetes Register: Privacy Information and How to Join

Privacy Information Notice: downloadable PDF

What is the Diabetes Register?

New medical treatments and therapies are being developed through research all the time, bringing hope to people living with diabetes. But the researchers making these breakthroughs need your help.

The NHS Research Scotland (NRS) Diabetes Register gives all patients with diabetes, living in Scotland, an opportunity to be contacted about taking part in diabetes-related research projects.

By joining the Diabetes Register, you allow the NRS Diabetes Network to securely access your NHS diabetes computer records. Your NHS diabetes computer record consists of information held in SCI-Diabetes. SCI-Diabetes provides an electronic patient record to support treatment of NHS Scotland patients with diabetes.

If a research project would benefit from someone with your health record taking part, a member of the research team will contact you to provide more information and ask if you would be interested (your name, preferred method of contact and Community Health Index (CHI) number are provided to the research team). 

Whether to take part in a research project is your decision to make.

For details on how your information is used, please read the Privacy Information Notice.

 

How do I join the Diabetes Register?

It only takes a minute to join the Diabetes Register.

To join by email:

  • Send your full name, postcode, date of birth and preferred method of contact to tay-uhb.sdrn@nhs.net.

To join by post:

Please read the Privacy Information Notice or, to receive a copy, please contact NRS Diabetes.

 

How do I withdraw from the Diabetes Register?

Withdrawing from the Diabetes Register is simple. If you decide you want to withdraw please call 01382 383 595 or email your full name, postcode, date of birth to tay-uhb.sdrn@nhs.net.

 

Questions?

If you have any questions or want to find out more please contact NRS Diabetes at:

  • Email: administrator-sdrn@dundee.ac.uk
  • Telephone: 01382 383 595
  • Address: NRS Diabetes, Diabetes Support Unit, Level 8, Ninewells Hospital, Dundee DD1 9SY.

 

NRS Diabetes Register Privacy Information Notice:

How NRS Diabetes use your information

Your personal information is in safe hands:
  • We do: respect your privacy
  • We do: keep your personal information secure
  • We don’t: sell your personal information.

Your privacy is very important to us. NRS Diabetes is committed to providing people with the information they need to understand how their personal information is used. This privacy notice is provided by the NRS Diabetes staff.

Privacy Information Notice: downloadable PDF